Blood Disorders
From United Kingdom Wiki
Sickle Cell Disorders and Thalassaemia
In the UK the groups most at risk of SCDs are of African-Caribbean and West African origin; thalassaemia is more comon among Cypriots, South Asians and Chinese, but also occurs among African-Caribbean and white British people.
The paper by Atkin et al. (1998) examines the screening and counselling services available to families caring for a child with sickle cell disorder or thalassaemia. It looks at the perspectives of parents, practitioners, managers and health commissioners. For more information, look at the free available abstract.
Atkin K; Ahmed W.I.U and Anionwu E.N (1998). Screening and Counselling for Sickle Cell Disorders and Thalassaemia: The Experience of Parents and Health Professionals. Social Science and Medicine. 47.11. 1639-1651. Abstract
Dyson, S, Culley, L, Gill, C, Hubbard, S, Kennefick, A, Morris, P, Rees, D, Sutton, F, Squire, P (2006). Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [EQUANS] in England: A Randomised Controlled Trial of Two Questionnaires. Ethnicity and Health, 11 (2), pp. 169-189(21). Abstract
Ethnic Question and Antenatal Screening for Sickle Cell/Thalassaemia Policy Briefing Paper Unit for the Social Study of Thalassaemia and Sickle Cell
De Montfort University Leicester, 2002-2005.
Coping with sickle cell disorder
This paper by Atkin & Ahmad (2001) explored how young people live and cope with a sickle cell disorder (SCD) or with thalassaemia major. In the process of their investigation they found that most people at risk of SCDs were of African Caribbean or West African origin. The thalassaemia gene is more commonly found amongst Cypriots, South Asians and Chinese and less commonly among African Caribbean and white British people.
There were relatively few ethnic or cultural differences observed in young people's responses to their illness in the study of 49 young people.
Atkin K and Ahmad W.I.U (2001). Living a Normal Life: young people coping with thalassaemia major or sickle cell disorder. Social Science and Medicine. 53. 615-626. Abstract
